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Showing posts with the label cystic fibrosis

The saving of an orphan from obscurity

  The house is strangely quiet now . My 12-year-0ld great grandson went home yesterday, and I miss him already. OBSCURITY (Definition): The state of being unknown, inconspicuous or unimportant Photo of Carson by Linda Lane Carson Thomas Lane will turn 13 years of age next month. His biological father abandoned him at birth, and his mom, Courtney, died - a victim of cystic fibrosis - at the age of 25 - when Carson was only seven years old. In the end, my granddaughter - being kept alive on a ventilator - chose the day her life would end . Two major hospitals had apparently determined that she was not "important' enough to receive a double-lung transplant. Please pardon me for my cynicism and lasting anger. Courtney chose my daughter, Lisa , (in turn supported by her husband, Jim ) as Carson's legal guardian and her then-boyfriend, Josh , as his surrogate dad. At the time of this writing, my great grandson still lives with Joshua Farrell and his mom, Heather. Prior...

Marcus Smart and his positive impact on my family

  Marcus Smart returned to TD Garden on Saturday night - in the company of his wife, Maisa and his 2-month-old son, Zayn - had a bit of an off game (3 points, 1-of-11 field goals, 2 boards, 2 assists) but his Grizzlies won, 127-121. Like most of us, I felt Marcus would retire a Celtic, but a bold (and successful) trade sent him to Memphis. During an interview, the man I call "The Wolverine" referred to his impact on the City of Boston and on his former team, the Celtics . I also want to add that he had an enormous impact on my family.  Carson Thomas Lane- I lost my mom recently to. But it’s people like ur great grandpa who will get u thru the tough times as you grow up. Much love young stud! Twitter- u know what to do. Send mail that uplifts & showers this kid w love. I’ll do my thing 2. https://t.co/JXZUmU3VeK — marcus smart (@smart_MS3) November 14, 2019 In November of 2019, my 25-yuear-old granddaughter, Courtney, was taken off life support following a life-long b...

A wrenching story of early death and a 12-year-old that loves life

  My grand daughter, Courtney, was born with a fatal illness, cystic fibrosis . She died at the age of 25, but not before she gave birth to my great grandson, Carson Thomas Lane - risking her own life to bring him into the world. This is her story. Carson turned 12 today. He told me, "I love my life"! June 25, 2012 (Written by Courtney Lane) What was supposed to be an amniocentesis, turned out to be the day that I was induced. See turns out that I wasn't sporadically pissing the bed, my water had just sprung a leak and it would soon no longer be safe for Carson inside me, because there was not enough amniotic fluid. They Assembled my team of specialists to come in and speak to me about the induction process. I could tell by the looks on their faces that this was not going to be an easy conversation. But I'll be honest, it was a conversation I had already had 1000 times. The induction process was going to put a lot of strain on my body, and there was a very good po...

Surviving past Eighty: Avoiding what can kill you

 The primary rule of survival is:   "Be aware of your surroundings" Okay. So what can kill you? The specific list is long, but the basic things that do people in include: 1.) Serious disease 2.) Traumatic injury 3.) Suicide 4.) Murder 5.) Terrible genetics I have survived several bouts with #1, serious illness - including dangerously-high blood pressure, prostate cancer and aortic stenosis . Any of the three maladies could have done me in had my doctor not detected the issues while they were still manageable.  The lessons are clear . I have almost-always been in good-to-excellent shape - and remain there at the age of 80-plus. It is always a good practice to go into surgery lean and muscular. The benefits of doing so far outweigh the work and mental discipline required. And another point. Avoiding the medical profession is not advisable for those seeking longevity. Referring to #2, I have had very few injuries in my life, with none being traumatic. Wherever I am - be it ...

Deep survival: "When you stop moving, your body shuts down!"

The quote is mine.  "When you stop moving, your body shuts down." --- Tom Lane I gave that advice to my older brother when I mnoticed he had put a stop to most activities. He reiterated my advice on a few occasions but didn't follow it. He died in his sleep at the age of 64. My grand daughter, Courtney, was born with a fatal disease, Cystic Fibrosis. I was told by one of my clients, also afflicted with the dreaded disease, that girls often don't take the medications or do the other procedures to remain alive longer. Courtney followed that path somewhat - fighting back from near-death a couple of times - but not being proactive. In other words, she would go into "deep survival" mode when facing death, but wouldn't always take proactive measures to help herself. I transmitted my quote to Courtney. She remembered it but didn't follow it. Courtney died at the age of 25, nine months after publication of the article. She had been refused a double-lung tran...